This is a really bad cellphone picture, but it is what I could get. Today has been what I have been calling picture day. She has been getting ultrasound pix of various parts, and x-rays, and later today an MRI. Part of this is the genetics workup and part is just routine for her conditions.
She has been doing really well today. She has slept well with minimal fussy periods, and she is calming and soothing more easily than even two days ago. She has also had periods of quiet alertness where she just seems to be taking in everything. She definitely recognizes her mother's voice and touch. Her NG tube is showing minimal drainage and she has been peeing and pooping, both of which are very good things. I am hoping that they will soon feel comfortable starting her on real feedings.